The complex situation that the agreement between the Medical Assistance Work Institute and the Foundation for the Fight against Childhood Neurological Diseases (FLENI) is going through yesterday had another chapter: the mobilization of a group of social work affiliates to demand a response on continuity of treatment in that specialized hospital.
The agreement, which expires today, is judicialized. A ruling by the Justice in administrative litigation ordered that the link continue and the treatments that are carried out be sustained.
“We called ourselves in the face of the lack of response to hundreds of patient families from the FLENI of Belgrano and Escobar. Disability does not wait”, stated the protesters who were yesterday at the IOMA headquarters, in 46 between 12 and 13.
In this context, Cecilia, mother of a patient, spoke of the pressing situation she is going through with her son. “Lucas has a dystonic spastic quadraparexia, he has no original diagnosis. He has been a patient of FLENI for more than ten years. He has a baclofen pump in place that refills every 60 days. Baclofen withdrawal results in death. On May 31 I have the recharge and FLENI is denying it to me because IOMA does not pay”, she recounted.
Laura detailed a situation that is more than worrying: “We are talking about boys with medical histories entered, who are with doctors for life, chronic treatments, scheduled surgeries that were suspended.”
From the social work they reported that the mobilized families were received by the legal area. “Ioma is looking at every case. Strict compliance will be given to the judicial mandate that orders the maintenance of the IOMA-FLENI agreement as determined by the Justice for the appeal presented by the Ombudsman’s Office, “they indicated. From FLENI they did not express themselves in this regard.