Readers' Letters II: Disillusioned (II)

My sister is Sandra Tula. At the end of July 2019, he was diagnosed with acute leukemia. By medical order, she was referred, through the Health Subsidy, to the Austral de Pilar Hospital, in Buenos Aires; there he began his “chemo” to dispel his cancer. In September of that same year, she had a septic shock that left her in a coma for 15 days. Thanks to God and the Virgin of Guadalupe (of whom she is devoted and has made a grotto) she was able to get ahead and God gave her another chance at life. My brother is Sandra’s twin and he underwent a treatment in 2020 to be able to do a bone marrow transplant, thanks to that today he is 100% compatible. Sandra and the doctors decided that to go to a transplant they should undergo a “chemo” treatment to zero the marrow and thus carry out the transplant. During this period he had been tolerating the “chemo”, but at the beginning of August of this year they began to be very invasive, causing an infection in his arm, which was an alarm for oncologists, who after several studies decided to continue with “chemo” it would produce non-tolerable effects on other organs (liver and intestine). With this panorama, the oncologists decided to replace the treatment of “chemo” by the application of the drug Blinatunomab, which was requested to the Health Subsidy of the Province. Today we have been 45 days without being able to get the social work to give the drug to the Hospital to be able to place it and thus be able to go to the transplant; While this waiting time passes, Sandra is given medication to sustain the disease and prevent it from progressing. The social work informs Austral that the Ministry of Health of the Nation does not advise the use of the drug. This drug is approved by the Anmat and has been used in cancer patients since 2018 in several private hospitals in Buenos Aires. My sister has a 15-year-old daughter who only sees her mother for Mother’s Day and the end of the year parties; Imagine what my niece goes through with her mother’s three-year hospitalization, despite all the family’s support and faith in God keep her in high spirits and praying to God to be with her again. Today we are one step away from being able to achieve it if the Health Subsidy allows it. Dr. Juan Manzur, today you are the Chief of the Nation’s Cabinet, I beg you to intercede with the Subsidy controller so that you can authorize the drug and my sister has the right to be able to go to a transplant and be with her daughter again. I hope you consider my request.

Gustavo Tula

Garcia Passage 1,031

San Miguel de Tucumán

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